Hi All

I know they say God doesn' give you any challenges you don't have the strength to handle but I am begining to think he is making a bit of a mistake with my son. He is only 14 months old and has had a whole host of challenges that would cause an adult time to pause.

If you read my post befoe (bottom forum) you know that I fuly believe that Morgan was a gift from God - one I went to a cathedal to ask for. I am truely grateful to have him but I would like him to have an easier life - the Mum in me being protective I guess.

So far we have had...

1- Bleeds for the first 3 months I was pregnant

2- Dilated kidneys diagnosed at the scan (grew out of this)

3- My body basically giving up during pregnancy and nearly killing him

4- 2 months prem (because of the above point)

5- 2 Heart problems diagnosed at 6 weeks (seems to be growing out of this)

6- Possibly going to need surgery for an undescended testicle (hope he grows out of this)

7- And now we are being referred as Morgan may have NF1 (Genetic disorder)

I know I should be grateful that God seems to be curing all these things as fast as he is giving them to us but I just want to know why we are getting them in the first place. What is a 14 month old supposed to learn from this? If its to teach me and DH something can we have the challenge not Morgan please?

Any thoughts? Anyone see another way of thinking about it or a way to help us through? Anyone with NF1 experience?

Love a very stressed and confused

Kath and Morgan xx

Born 19th July 2008 - 2 months early!

Proud TFW!!!!

 

I am sorry you are having such a hard time; no easy answers really except that when I have faced such problems I always found some consolation in that verse in Corinthians about God not testing us beyond what we can bear; although that can be hard in itself to understand.

I don't have much direct experience of NF - we did have a foster child once for whom it was a suspected diagnosis (lot of cafe au lait marks) but tests proved negative. I do know (there was an article in a national paper I think, last week?) that monitoring and treatment when problems occur have improved remarkably over the last few years, and that it can vary a lot in its effects anyway; I do pray that even if the worst diagnosis occurs, the actual effects will be unnoticeable.

Julie

Hi Kath

Sorry to hear you are having all these difficulties and worries. Personally, I really don't buy into the 'God never tests us more than we can bear.' I know too many people who have been through such awful things to see how that can make any sense at all. Similarly, I don;t think that this is happening because God wants to punish or challenge you or your DH.

Sadly, we live in a fallen world and all have to face hardships, illness and difficulties on our jouney through life. However, I do firmly believe that God loves each of us more than we can possibly imagine and that he can give us all the courage and strength we need to deal with the challenges life throws us. I pray that the Lord will fill your heart with peace and joy and a secure knowledge that he has your name and that of your beautiful little boy carved on the palm of his hand and that he will never abandon you to despair.

On a practical note, I don't know anything about NF but have found this UK support group which might be able to put you in touch with other Mums who do have experience of this condition: http://www.nfauk.org/. I pray that Morgan doesn't have NF and that if he does it will be manageable and not cause him too many problems.

Please do post again and let us know how you are getting on. I will be praying for you.

Hi

Morgan had an appointment with the surgeon yesterday and his testicle has finally descended and there is no sign of the fluid that was surrounding it.

I guess that although Morgan keeps getting the problems they are getting fixed without surgery.

I hope this is Gods hand in the matter.

Love

Kath and Morgan xx

Born 19th July 2008 - 2 months early!

Proud TFW!!!!